Reports

Some of these reports can be downloaded in a readable format called "pdf" (portable document format), which is viewable with the Adobe Acrobat Reader. If you do not already have this reader, it is provided, without charge, by Adobe at the following Internet site (http://www.adobe.com/prodindex/acrobat/readstep.html). Click on the highlighted link to download Adobe Acrobat Reader.

• Early Intervention for Infants & Toddlers with Disabilities and Their Families: Participants, Services, and Outcomes (2007), by Kathleen Hebbeler, Donna Spiker, Don Bailey, Anita Scarborough, Sangeeta Mallik, Rune Simeonsson, Marnie Singer, and Lauren Nelson. This comprehensive final report from the 10-year National Early Intervention Longitudinal Study (NEILS) summarizes some of the key findings from the study and notes their implications for policy, practice, and additional research.
  
  
• Family Outcomes at the End of Early Intervention (2004), by Don Bailey, Anita Scarborough, Kathleen Hebbeler, Donna Spiker, and Sangeeta Mallik. This is a report on families' outcomes following their experiences with early intervention programs at the time their children turned three.
  
  
• Services Received by Children and Families Early Intervention (2001). This chapter was reported in Section III of the 23rd Annual Report to Congress. This chapter provides information on the multiple features of the first 6 months of services for children and families in early intervention.
  
  
• A summary of NEILS findings on the report entitled Demographic characteristics of the children and families participating in early intervention services, can be found in the document entitled Demographic characteristics of children and families entering early intervention-Executive Summary.
  
  
• NEILS findings on the birth history and health status of the children participating in early intervention services and how they are associated with key child and family characteristics, as reported by families, can be found in the report entitled Birth History and Health Status of Children Entering Early Intervention.
  
  
• Expenditure Study (2004), by Jesse Levin, Maria Pérez, Irene Tar, Jay Chambers, and Kathy Hebbeler. This is a report on the expenditure study, conducted by AIR as a component of NEILS, that outlines the expenditures associated with providing and supporting early intervention services.  The main objective of the study was to estimate average monthly and total expenditures for the typical child receiving early intervention services in the U.S.  It also explored the level of spending on EI services and outcomes of children at 36 months.
  
  
• Demographic characteristics of children and families entering early intervention (2003), by Kathleen Hebbeler, Donna Spiker, Sangeeta Mallik, Anita Scarborough, and Rune Simeonsson. This is a report on the demographic characteristics of the children and families participating in early intervention services, as reported by families.
  
  
• Results Experienced by Children and Families 1 Year after Beginning Early Intervention (2002). This chapter was reported in Section IV of the 24th Annual Report to Congress. This chapter examines results for children and families approximately 12 months after entry into early intervention.
  
  
• Families' First Experiences with Early Intervention (2003), by Don Bailey, Anita Scarborough, and Kathleen Hebbeler. This is a report on several aspects of families' experiences in beginning early intervention services (timing of concerns, diagnosis, entry, as well as parent perceptions of the identification process, the professionals in early intervention, and the resulting plan for goals and services). Click here for the Executive Summary of this report.
  
  
• Sampling and Weighting Procedures: Enrollment Form, Family Interveiw, Service Records (2002), by Harold Javitz, Donna Spiker, Kathy Hebbeler, and Mary Wagner. This report provides detailed information on sampling and weighting procedures used in the NEILS study.
  
  
• Characteristics of children and families entering early intervention (2001). This chapter was reported in Sections I, II, and III of the 23rd Annual Report to Congress. This chapter provides a descriptive picture of children's disabilities, birth status, health, and behaviors shortly after entering early intervention.
  
  
• A First look at the Characteristics of Children and Families Entering Early Intervention Services (2001), by Kathy Hebbeler, Mary Wagner, Donna Spiker, Anita Scarborough, Rune Simeonsson, and Marnie Collier. This report presents findings on the information reported on early intervention professionals about children and families who were in early intervention for the first time.
  
  
• Characteristics of Children and Families Entering Early Intervention (2000). This chapter was reported in Section IV of the 22nd Annual Report to Congress. It addresses the reasons children are deemed eligible for early intervention, their ages at entry into early intervention, and other demographic characteristics.
  
  
• State-to-State Variations in Early Intervention Systems (1999), by Kathleen Hebbeler, Donna Spiker, Mary Wagner, Renee Cameto, and Patti McKenna. This is a report on the variations in how states are organized to provide early intervention services.
  
  
• The National Intervention Longitudinal Study (NEILS) Design Overview (1998), by Kathleen Hebbeler and Mary Wagner. This report delineates NEILS design and how the study is being conducted.

Publications

• Scarborough, A. A., Hebbeler, K. M., Spiker, D., & Simeonsson, R. J. (2007). Dimensions of behavior of toddlers entering early intervention: Child and family correlates. Infant Behavior and Development, 30, 466-478.
  
  
• Scarborough, A. A., Hebbeler, K. M., Simeonsson, R. J., & Spiker, D. (2007). Caregiver descriptions of the developmental skills of infants and toddlers entering early intervention services. Journal of Early Intervention, 29(3), 207-227.
  
  
• Scarborough, A., Hebbeler, K, & Spiker, D. (2006). Eligibility Characteristics of Infants and Toddlers Entering Early Intervention Services in the United States. Journal of Policy and Practice in Intellectual Disabilities, 3(1), 57-64. (This is an electronic version of an article published in Journal of Policy and Practice in Intellectual Disabilities: complete citation information for the final version of the paper, as published in the print edition of Journal of Policy and Practices in Intellectual Disabilities, is available on the Blackwell Synergy online delivery service, accessible via the journal's website at http://www.blackwellpublishing.com/jppid or http://www.blackwell-synergy.com). A summary of this article can also be found on: http://www.fpg.unc.edu/~images/pdfs/snapshots/snap38.pdf
  
  
• Simeonsson, R. J., Scarborough, A. A., & Hebbeler, K. M. (2006). ICF and ICD codes provided a standard language of disability in young children. Journal of Clinical Epidemiology, 59, 364-372.
  
  
• Spiker, D., Hebbeler, K., & Mallik, S. (2005). Developing and implementing early intervention programs: Children with established disabilities. In M. J. Guralnick (Ed.), A developmental systems approach to early intervention: National and international perspectives (pp. 305-349). Baltimore: Paul H. Brookes Publishing.
  
  
• Bailey, D., Hebbeler, K., Spiker, D., Scarborough, A., Mallik, S., & Nelson, L. (2005). 36-month outcomes for families of children with disabilities participating in early intervention. Pediatrics, 116, 1346-1352.
  
  
• Scarborough, A. A., Spiker, D., Mallik, S., Hebbeler, K., Bailey, D., & Simeonsson, R. J., (2004). A national look at children and families entering early intervention. Exceptional Children, 70(4), 469-483.
  
  
• Spiker, D., Hebbeler, K., Wagner, M., Cameto, R., & McKenna, P. (2000). A framework for describing variation in state early intervention systems. Topics in Early Childhood Special Education, 20, 195-207.
  
  
• Hebbeler, K. M., & Spiker, D. (2003). Initiatives on children with special needs. In J. Brooks-Gunn & L. Berlin (Eds.), Early child development in the 21st century: Profiles of current research initiatives (pp.269-325). New York: Teachers College Press.
  
  
• Bailey, D., Hebbeler, K., Scarborough, A., Spiker, D., & Mallik, S. First experiences with early intervention: A national perspective. Pediatrics, 113 (4), 887-896.
  
  
• Bailey, D.B., McWilliam, R.A., Darkes, L.A., Hebbeler, K., Simeonsson, R.J., Spiker, D., & Wagner, M. (1998). Family outcomes in early intervention: A framework for program evaluation and efficacy research. Exceptional Children, 64, 313-328.