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Title: The National Early Intervention Longitudinal Study

What's New 

  • SRI International and the Office of Special Education Programs (OSEP), U.S. Department of Education, will sponsor a two and half day training workshop on the use of large-scale educational databases for research and policy studies, June 16-18, 2008. The workshop will cover descriptions and applications of National Early Intervention Longitudinal Study (NEILS). For more details click on the .pdf document or the Word document.

  • The NEILS data is now available in the form of a public use data-set on CD. To order a copy, please email: doris.perkins@sri.com.

  • Kathleen Hebbeler presented NEILS findings entitled The National Early Intervention Longitudinal Study: A Look at Early Intervention Services and Outcomes at the OSEP/Westat Overlapping Part B and Part C Data Managers Meeting, Washington DC, July 2007.

  • A 2.5 day NEILS Database Training workshop was held on June 13-15, 2007. For more details click on: NEILS Database Training Workshop Announcement

  • A comprehensive final report from the 10-year National Early Intervention Longitudinal Study (NEILS) entitled Early Intervention for Infants & Toddlers with Disabilities and their Families: Participants, Services, and Outcomes (2007) by Kathleen Hebbeler, Donna Spiker, Don Bailey, Anita Scarborough, Sangeeta Mallik, Rune Simeonsson, Marnie Singer, and Lauren Nelson is now available on our web-site. This report summarizes some of the key findings from the study and notes their implications for policy, practice, and additional research.

  • A journal article entitled Eligibility Characteristics of Infants and Toddlers Entering Early Intervention Services in the United States was recently accepted for publication in the Journal of Policy and Practice in Intellectual Disabilities (See Reports & Publications).

  • A journal article on NEILS data entitled I CF and ICD codes provide a standard language of disability in young children was recently accepted for publication in the journal Journal of Clinical Epidemiology (See Reports & Publications).

  • Kathleen Hebbeler, Anita Scarborough, and Rune Simeonsson presented NEILS findings entitled Milestone attainment of young children with disabilities: Applying survival analysis at the 133rd Annual Meeting of the American Public Health Association (APHA) in New Orleans, Louisiana, November 5-9, 2005.

  • Anita Scarborough, Donna Spiker, Kathleen Hebbeler, and Rune Simeonsson presented NEILS findings at a paper symposium entitled Correlates of the Behavior Patterns of Toddlers Entering Early Intervention at the APA Annual Convention in Washington, DC, August 18-21, 2005.

  • Anita Scarborough, Rune Simeonsson, and Kathleen Hebbeler presented NEILS findings entitled Defining Environmental Factors of Young Children in Early Intervention at the 11th Annual NACC Conference at the Mayo Clinic in Rochester, Minnesota, June 21-24, 2005.

  • Kathleen Hebbeler, Donna Spiker, Don Bailey, and Anita Scarborough presented NEILS findings in a paper symposium entitled The National Early Intervention Longitudinal Study (NEILS): The Children, Families, Services, and Outcomes of Part C Early Intervention at the National Association for the Education of Young Children's (NAEYC's) 14th National Institute for Early Childhood Professional Development, Miami Beach, Florida, June 5-8, 2005.

  • Kathleen Hebbeler, Donna Spiker, Sangeeta Mallik, Anita Scarborough, and Melissa Raspa presented NEILS findings at a paper symposium entitled Improving Outcomes for Young Children with Disabilities through Early Intervention: Program Options and Policy Challenges at the 2005 Biennial Meeting of the Society for Research in Child Development (SRCD) in Atlanta, Georgia, April 7-10, 2005.

  • Family Outcomes at the End of Early Intervention (2004), by Don Bailey, Anita Scarborough, Kathleen Hebbeler, Donna Spiker, and Sangeeta Mallik. This is a report on families' outcomes following their experiences with early intervention programs at the time their children turned three.

  • Services Received by Children and Families Early Intervention (2001). This chapter was reported in Section III of the 23rd Annual Report to Congress. This chapter provides information on the multiple features of the first 6 months of services for children and families in early intervention.

  • NEILS findings on the birth history and health status of the children participating in early intervention services and how they are associated with key child and family characteristics, as reported by families, can be found in the report entitled Birth History and Health Status of Children Entering Early Intervention.

  • NEILS findings on expenditures associated with providing and supporting early intervention services can be found in the report entitled Expenditure Study.  The main objective of the study was to estimate average monthly and total expenditures for the typical child receiving early intervention services in the U.S.  It also explored the level of spending on EI services and outcomes of children at 36 months.

  • A journal article on NEILS data describing the characteristics of children and families entering early intervention entitled A national picture of children and families entering early intervention was recently accepted for publication in the journal Exceptional Children (See Reports & Publications).

  • A journal article on NEILS data describing several aspects of families' experiences in beginning early intervention services entitled First experiences with early intervention: A national perspective was recently accepted for publication in the journal Pediatrics (See Reports & Publications).

  • Some of the NEILS instruments are now available on the Web. (See Data Collection.) 

  • Families of NEILS children who are enrolled (2004-2005) kindergarten were contacted for an interview.  A total of 69 families completed interviews. A total of 66 kindergarten teacher surveys have been mailed to teachers.

Funded by the U.S. Department of Education Office of
Special Education Programs